Communication with the school is vital. Inform the school as soon as you can if your child: requires frequent admissions to hospital, has a hospital admission coming up, has had an illness or has been hospitalised with a period of time at home recovering

If the absence becomes prolonged talk to the SENCO. This is the Special Educational Needs Coordinator. You can ask them about the ways in which the school can help ensure a smooth return back to school for your child. The SENCO can also advise you about the Code of Practice. This is a document which lays out guidelines for schools on the best ways of meeting the needs of pupils.

If your child starts or changes school it is important to meet with the school nurse and teachers in order to inform them about your child's condition, the symptoms, the medication that they have to take and treatments that they undergo. Remember that although you may be familiar with the daily medical regime of your child their teachers may not. It might be helpful to give a timetable of a 'normal' day for your child to their teachers. Informing the school about changes in medication should also be thought about. Some medications can alter the mood or appearance of a child. When school staff are aware of this they can develop strategies to best support your child through this time.

Meet with school staff to discuss with them any issues which may arise as a result of your child's condition. This can sometimes involve children doing things which might usually be seen as breaking 'School Rules',e.g. needing to eat regular snacks throughout the day, and not just at break time and lunchtime, or handing in homework a bit later than everyone else, or not doing PE when appearing 'healthy'. It is through communication between parent and school that these concerns can be considered in order to avoid any misunderstandings, and prevent unnecessary stress for your child.

It is most important to talk with your child about their concerns.
Children with chronic illnesses often do not want others to know detailed information about them. They do not want to be seen or treated in any way differently to their peers. A balance has to be achieved in order for a child to deal with their illness, maintain their identity and have full access to education.